They have scheduled an EEG for Abe on Monday. We think that he is having infantile spasms (I heard the gasps). I hope with all my heart that my mommie feelings are wrong this time. Those of you familiar with seizures know these are not the kind we want him to have if he has to have them.
I am having a really hard time believing that the mighty God I serve is going to allow his little body and our family to go through this awful stage once again. I am having a hard time believing that God will not reach down and heal his little body of these.
I have a dear friend that reminded me of where two or more are gathered in His name. Each night she and her daughter gather to pray. I am begging ya'll to PLEASE gather with us and pray that Abe has a clear EEG.
I am mad at the world right now because I am tired of seeing how unfair life is. I will continue to do all I can to give my children the best care that they deserve. This includes the best medical care. We will do whatever we have to do but I am praying hard we don't have to go down this road.
Abe hasn't slept in several several nights so I know that's not helping me mentally. I just want to protect him and all this is out of my control. God has him in His care and I am trying with all my heart and soul to trust that he will be fine. I wish I didn't know so much and all this was new. Then I wouldn't have the knowledge to be fearful.
We will be at Egleston all day Monday because after the EEG everyone except Marlee Anne (thankfully!) has an appt with neurology. Mary Elizabeth's appt will go fine I am sure. We will be discussing possible VNS and med changes for Michala. Please pray we along with the doctor have wisdom on the direction to take. I will update when I can.
Thank you so much for praying with us!!!