Wednesday, December 24, 2014
Monday, December 22, 2014
The past three days Michala has only had two-three very brief startle seizures each day. Tonight she enjoyed her daddy sliding her around on the frozen pathway.
We had a packed weekend. Friday we enjoyed going to Fort Collins. We are still looking for a place to move to when we have to leave this house. Our friend told us to check out Fort Collins and Windsor. If anyone knows of a place or area for us to look please let us know. Please be in prayer about this with us too.
Saturday we drove into Wyoming so we could mark off another state on our list. We didn't take any medical cannibis oil with us so we weren't breaking any laws. We saw some beautiful antelope.
We drove through Cameron's Pass in Colorado and the snow was incredible. Just breathtaking. The beauty and the cold!
Tuesday, December 09, 2014
Wednesday, September 03, 2014
Saturday, August 23, 2014
We don't expect 100% support from everyone. We know that some people will never understand it. What we do ask is that no matter what, you pray that God's will be done, you love & support us no matter what or at the very least you don't say anything, especially please do not be negative about it. We welcome questions to better understand the cannabis oil or why we cannot get it legally in Georgia but please do not tear us down or be negative about us doing what we feel led to do.
This is not a knee jerk response that took place after Abe died. We are not entering into this without a great deal of prayer. We held onto HOPE that Georgia would do the right thing in 2014. When it didn't pass we started the process to get Michala & Abe into the Epidiolex study. The one that Georgia state representative Sharon Cooper said we would be able to do at CHOA before the end of the year. Yes she told it to our faces while we were at the capital waiting to get all 3 of our children in wheelchairs on the elevator. It's too late for Abe & it doesn't look like Michala is going to be able to get into it. Waiting is not an option at this point.
It would be a lot easier to stay at home. Going to a different state to get our children help is not new to us. University of Alabama, Boston Children's, and University of Iowa have been our "homes" at one time.
Mike will continue to work to provide for our family as he always has. Especially now because we will have 2 homes along with 2 sets of utilities and travel expenses. Our family will be apart once again. We will be leaving family, friends, doctors, and our local support system.
We would love your prayers please. Thank you!
Tuesday, August 19, 2014
Sunday, August 17, 2014
Sunday, July 27, 2014
Thursday, July 10, 2014
Tuesday, June 24, 2014
Wednesday, June 04, 2014
Let me preface this by saying I was born a Baptist and raised a Baptist. One of my best friends was Methodist and I enjoyed going to church with her, especially MYF.
When Marlee Anne asked her dad & I if we could start going back to church, how could we say no. She was thankfully unaware of the trials we had faced trying to find a place where we fit and that was accepting and understanding of our unique situation. With a huge smile on her face, when we asked her where she wanted to visit, she said Starrsville Methodist. My first thought was it can't hurt to visit because I knew God wasn't leading us to this church even though we had been praying for years for Him to lead us to the right church. The one where He wanted us to serve. It couldn't be this one because it was Methodist. What do they even believe? It's a small church. Would there be a place for us to serve? We can't just attend church and not serve.
To give a little history our dear friend Kendra graciously took Marlee Anne to Starrsville's Vacation Bible School every year. The first night she came home talking 90 miles a minute about how it went. The first thing she said was I have a wonderful teacher. Her name is Miss Jane. Miss Jane who we asked. She didn't know but would be sure to find out. The next night she came in to tell her daddy that Miss Jane was his teacher when he was younger. It was Mrs. Jane Anderson. Each night this child's heart was filled more and more. We were so thankful to Kendra and the dear people of this church. Never underestimate the impact of your VBS.
So years later impacted by her Vacation Bible School experiences Marlee Anne requested to visit Starrsville first. We decided I would go with her and we would leave everyone else at home. Why overwhelm these dear people? Well the pastor was a female. Yes you Baptist friends on mine that's a lady pastor. My only personal knowledge of a female pastor was Royeese Stowe. I think she is wonderful so why not give this pastor the benefit of the doubt. The people of this small church with a big heart were indeed that. They were so very welcoming.
On the way to Henderson's to pick up lunch after church I thought, that would be a plus. As we were driving along talking about the morning I asked Marlee Anne where she would like to visit next. She said I feel like God wants me there. That's where I would like to be. Well I didn't say a word out loud. I did say to God, here? You want us here? I knew I had a peace about it but continued to ask God if He was sure. I said God how can you use me here? How can I bless others?
From that day since He has reminded me it's not always about blessing others. It's ok to be blessed. Boy have we been blessed.
Last night I had the privilege to have dinner with some of the most wonderful women I know from this wonderful church we call home. They bless my soul more than they will ever know. Funny thing is that female pastor is still there too blessing me daily.
When we pray for direction and God lights the way it's probably best to just follow Him even when we are not sure what's ahead. I pray that as you are blessing others you are also being blessed!