Thanks so much for the prayers. When we got there we were told that on May 20th the office called our home and cancelled Abe's appt. I asked who they spoke with and she said mom. I told her that I was not at home on the 20th because I was in Iowa. She said well that's strange because if someone had called to cancel then they should have made a new appt. They had not because she looked to see if Abe had another appt. Thankfully the appt was with Dr. Holt who has been Mary Elizabeth's neurologist since she was 3 and she is also Michala's. They went back and asked if he would see us and he said yes.
So the appt went well. First Dr. Holt said leave Abe on the seizure med, then he said well let's let him grow out of it, then his final decision was to wean him. It will take about a month to get him off of it completely. PLEASE pray that Abe doesn't have any seizures. Dr. Holt felt confident about taking him off it since he had a clear EEG.
Thanks again for your prayers!