Monday, June 18, 2012

Wendy's and Camp Sunshine!


CS Logo Name Only
Purchase a Wendy's Frosty Key Tag
for Camp Sunshine!

Dear Kelli,

Cool off this summer with a FREE Jr. Frosty from Wendy's by purchasing a $1 Frosty Key Tag!
Proceeds will benefit Camp Sunshine and the Dave Thomas Foundation for Adoption.

Please feel free to share this with your friends and family - the more tags that are purchased, the better!

Thank you so much for your support of Camp Sunshine's year round programs for kids with cancer!

- Camp Sunshine

Friday, June 08, 2012

Brag moment!

This week Marlee Anne went to Creative Kids Camp at Oxford College. She learned songs, did crafts & made new friends. My proudest moment was just now when she told me a specific counselor of her's was a Christian. I asked her how she knew that. She said she asked her. Be bold & let Jesus shine is a prayer of ours each day. So thankful she was bold & let Jesus shine.

Thanks for letting me brag!!!

Kelli
http://nomatterwhathappens-kelli.blogspot.com/
http://m.facebook.com/kelliskreations

Thursday, April 26, 2012

One more email

Ok ya'll please bear with me as I share my heart one more time tonight. Each day I pray that God will prepare my heart for what He wants me to learn & how He wants me to grow more like Him. I also pray that He will use me & my family, our children & Mike in any way he sees fit. I think praying that is not enough. It has to be more than words. My eyes & my heart have to open & be aware of all that I have sincerely prayed for. Sometimes I am so aware of why God chose me, of why we have to be in this place right now.

Tonight our precious friends Katie & Uncle Buck came to see us. I was telling them about our friend Lindsay being here. I sent Sara a text to see if we could go see her. I thought nothing about where we were about to go. I walked through the doors of Aflac where I first walked through 13 years ago. Behind those transplant doors I saw that little room & heard Dr. Olson's words when he told us Michala had cancer. I was brought back to today when my dear friend Sara - Lindsay's mom walked out with that smile of her's on her face.

Ok I have to take a minute to tell you about Sara. Here is the mom whose daughter was days from survivor clinic relapse with Leukemia. Here is a mom whose daughter gave bone marrow to her sister Lindsay to save her life. Here is a mom who hears that her daughter has relapsed for a second time. Still she walks out with a smile on her face.

While she is catching up with Buck my thoughts creep back to those horrible chemotherapy days. As we get up to go see Lindsay and we walk through those dreaded doors my legs get heavier & heavier. Two doors down from Lindsay was where Michala was when she had her very first chemo. Four doors down the other direction was where we sat as we were told our baby wouldn't make it through the night. Her body had handle all it could & it was shutting down.

Then I am standing in front of Lindsay's door. My heart breaks into a million pieces. No one could have prepared me for what I saw. Sara had told me she was so very sick. Sara told me that she was weak. No where in my mind & heart was she this sick & this weak.

How many times do I get caught up in me & mine. How many times am I so overwhelmed with life, with seizures, with medical issues? This week I even used the words self absorbed. There is a world around me that is hurting. No amount of money, gifts or even coffee & Krispy Kreme donuts (a story for another day) that will take away Lindsay's pain & heal her of leukemia. However those extra minutes I have stopped at a light, waiting on meds to dissolve, waiting on Abe's second beep on his pump, I can say an extra prayer for Lindsay, for her mom, dad & sister. God reminded me why I am here. Am I caring for others? No not like He wants me to be. Who is your Lindsay? Who does God want you to reach out to? I know it takes time. I know your time is precious. When we stand in front of Him and He ask was "this" more important than "them" what will we say? My prayer is that MY "this" will get out of the way so HIS "them" will be first & foremost in my life.

As I finished this email Sara text me that Lindsay had a nose bleed & platelets were on the way. Please lift sweet 13,year old Lindsay up in your prayers. These are times I don't understand why this happens for a reason.

Kelli

Tonight

Tonight I got "kicked" out of the PICU. Not for bad behavior like some may think but because from 7-8 there is shift change. I went down to the cafeteria for supper. I chose a small table over in the corner so I could collect my thoughts & thank God one more time for the incredible blessings of today. As I was sitting there a mother with 2 smalls boys walked up to the table across from me. I noticed the boys had big brother shirts on. The youngest little boy smiled & waved at me. It made the mom turn and look at me. I could tell from the way she was walking that she had recently had a baby. I asked if they had a baby in the NICU. She said yes she was born Monday. She pulled her chair closer to my table & began telling me her story. Her baby was diagnosed with spina bifida at 23 weeks. Monday they did a c-section & brought her here. The mother was released from the hospital and came here to be with her baby for her first surgery. Tomorrow she will have surgery for a shunt.

As she continued to talk the baby's grandparents came up. You know I always wonder about someone's support system in this situation. In a few minutes the baby's great grandmother sat down. After that dad came walking up. He stood behind his wife in this large opening cafeteria and said the sweetest blessing. He thanked God for the blessings He had given them. The mother had told me earlier that she knew her daughter had spina bifida for a reason.

I don't know that reason. Maybe someone else in there saw & heard that daddy. Maybe that changed someone's life. I know from what I saw tonight that this family is going to be just fine.

Amazing God!

Color amazing! Sats great! Smiling & laughing! What an incredibly mighty God we serve! He went above & beyond anything I ever dreamed or wished for! So thankful & blessed!!!

Wednesday, April 25, 2012

Thank you to our nurses!

Here are the pins Marlee Anne made as a thank you for Mary Elizabeth's nurses. Praying for some awesome nurses to take care of her!

Tuesday, April 24, 2012

Prayers please

Tomorrow Mary Elizabeth will be admitted to Egleston for gtube surgery on Thursday. That is as long as the anesthesiologist says the benefits of the gtube outweigh the risk of her being sedated because of her mitochondrial disease & respiratory issues. We know the benefits first hand but understand how great the risk is. I have gone into defensive mode already & put my bulldog skirt on. Please pray for protection over Mary Elizabeth's body during the surgery, peace for us as we wait, peace at home for our children & those taking care of them. Please pray for God's will. Thanks so much for the love & support during this time.

Wednesday, April 18, 2012

I'm a Little Tea Cup!

I'm a Little Tea Cup
There was a couple who took a trip to England to shop in a beautiful antique store to celebrate their 25th wedding anniversary. They both liked antiques and pottery, and especially teacups.

Spotting an exceptional cup, they asked "May we see that? We've never seen a cup quite so beautiful."
As the lady handed it to them, suddenly the teacup spoke, "You don't understand. I have not always been a teacup. There was a time when I was just a lump of red clay. My master took me and rolled me, pounded and patted me over and over and I yelled out, "Don't do that. I don't like it! Let me alone," but he only smiled, and gently said, "Not yet."

Then WHAM! I was placed on a spinning wheel and suddenly I was made to suit himself and then he put me in the oven. I never felt such heat. I yelled and knocked and pounded at the door. "Help! Get me out of here!" I could see him through the opening and I could read his lips as he shook his head from side to side, "Not yet."

When I thought I couldn't bear it another minute, the door opened. He carefully took me out and put me on the shelf, and I began to cool. Oh, that felt so good! "Ah, this is much better," I thought.
But, after I cooled he picked me up and he brushed and painted me all over. The fumes were horrible. I thought I would gag. "Oh, please, stop it, stop, I cried." He only shook his head and said, "Not yet."

Then suddenly he puts me back in to the oven. Only it was not like the first one. This was twice as hot and I just knew I would suffocate. I begged. I pleaded. I screamed. I cried. I was convinced I would never make it. I was ready to give up. Just then the door opened and he took me out and again placed me on the shelf, where I cooled and waited and waited, wondering, "What's he going to do to me next?"

An hour later he handed me a mirror and said, "Look at yourself." And I did. I said, "That's not me. That couldn't be me. It's beautiful. I'm beautiful!"

Quietly he spoke: "I want you to remember. I know it hurt to be rolled and pounded and patted, but had I just left you alone, you'd have dried up. I know it made you dizzy to spin around on the wheel, but if I had stopped, you would have crumbled. I know it hurt and it was hot and disagreeable in the oven, but if I hadn't put you there, you would have cracked. I know the fumes were bad when I brushed and painted you all over, but if I hadn't done that, you never would have hardened. You would not have had any color in your life. If I hadn't put you back in that second oven, you wouldn't have survived for long because the hardness would not have held. Now you are a finished product. Now you are what I had in mind when I first began with you."

The moral of this story is this: God knows what He's doing for each of us. He is the potter, and we are His clay. He will mold us and make us and expose us to just enough pressures of just the right kinds that we may be made into a flawless piece of work to fulfill His good, pleasing and perfect.

So when life seems hard, and you are being pounded and patted and pushed almost beyond endurance; when your world seems to be spinning out of control; when you feel like you are in a fiery furnace of trials; when life seems to "stink", try this.

Brew a cup of your favorite tea in your prettiest tea cup, sit down and think on this story and then, have a little talk with the Potter.
God Bless You!

Sunday, April 08, 2012

He lives!

I woke up this morning with these words on my heart & mind. He lives, He lives, Christ Jesus lives today!
He walks with me and talks with me along life's narrow way. He lives, He lives, salvation to impart!You ask me how I know He lives? He lives within my heart.

I was immediately taken back to when I was a child at Calvary Baptist Church. On Easter Sunday you walk in with your Easter best on. My daddy with his suit & tie, my mama with her dress, hat & purse, then me with my new dress, new shoes, hat, purse & gloves.

As I was thinking back to those days I thought how very important it is for us to always have on our Easter best. Not the clothing but you know that feeling that we have in our hearts on Easter. We are dressed in our finest and don't want to get dirty. We want to walk into the Lord's house and Him be proud of us. How true for our everyday lives. We want to look and act our best for God. We don't want to get dirty from the world and all the temptations.

Let's think of it for a moment. What if everyday we were able to go to God's house to sit and worship. Wouldn't that protect us from the world? Ok so everyday we can't literally sit in His house but we can certainly sit in His presence. Start our day out in His word. Allow Him to surround us, our hearts, our bodies, our thoughts, our homes and our work places with His love and protection from the world so we don't get dirty. We have now armed ourselves with Christ and are ready to go into the world to share the love of God that many may never know if not for us.

The other day as I was talking with someone they said they don't know how to witness and share Christ love with someone. I told them that I am far from an evangelist. God will use anyone that is willing & when He puts us in a place He will give us the words if they are needed. Many times it has been a smile I have shared, a hug, a meal or filled whatever need they had.

My prayer today is that I will carry this Easter heart and spirit with me through this year not only just today. I am overwhelmed when I think of what He did for me, for us. I am amazed that what He ask from us in return is so very simple and easy. I am in awe at what lies ahead of me in His kingdom of glory.

I trust that each of you had or are having a beautiful Easter Sunday filled with an overwhelming thankfulness of what Jesus did for you!!!

Thursday, April 05, 2012

2012 Masters

Mike & I are headed home from the Masters so I will make this quick so I can spend more valuable time with him. I had to share this right now because I wanted ya'll to feel just a taste of what I experienced today.

First we were blessed with tickets to the Masters. Then everything fell into place for our children to be taken care of while we were gone.

Our Masters angel provided chairs early in the morning so that we had front row seats to see Jack, Arnie & Gary start the Masters. As they walked out I cried. I have seen them before but this was so very special. Really awesome men in my opinion.

Because we had such awesome seats we sat there to watch some more of the great golfers. We met some really colorful people that we enjoyed talking with. Internationally & domestic. One we knew right away was Canadian thanks to our wonderful friends from Canada. LOL!!!

We had our picture made in front of the clubhouse, had lunch & then made our way all around the course. It was an incredibly beautiful day that we are so blessed to have God lay put before us.

The only thing I didn't get was a green cup (cause it had beer served in it) but it was a cool green cup. Also I just knew I was going to catch a glimpse of David Feherty. Didn't happen this time.

Thanks so much to all of you that made today happened & for praying for us!

Kelli
http://nomatterwhathappens-kelli.blogspot.com/
http://m.facebook.com/kelliskreations

Monday, March 26, 2012

Appt update

Well we are heading home from our whirlwind appts. It's a long day but easier to do it in a day than getting a hotel room & having to pack all the medical equipment for one night.

Mary Elizabeth & Abe both were due for X-rays. Mike & Marlee Anne took them while Michala & I answered all the nurses questions to update everyone's charts.

Dr. Westberry saw Abe first. He said his X-rays showed the bones in his feet out of place from clubfeet. He said that if they started giving him trouble he would do surgery.

Michala was up next. Her spine looked good. When she checked her stump she could tell right away how sensitive it is. Michala has been having some pain with it. She suggested trying some neurontin but we have to check with Neuro to make sure it's ok with her other meds.

Mary Elizabeth's curve was slightly worse but she suggested just to watch it which we were perfectly happy with. Her hip is slightly more uncovered than it was & stretched but she said not too bad. She suggested trying some baclofen to help with the tightness in her hamstrings.

All in all good appts & we don't go back for a year. Yay!!!

On the way there we got a call from our sweet friend Connie. She said her friend owns a restaurant in Greenville & would like to have us there for dinner. Well if you are ever in Greenville stop by the Fitzpatricks Pub. The food & the service were great! What a wonderful treat & such a blessing.

If you read this before midnight please pray for our trip home. Mike driving & not getting tired. Please pray the children & I ride well without getting upset. So far that's not working so well because Michala is very unhappy.

Thanks for the prayers for a safe trip there & good appts!

Update

> While we are traveling to Greenville I thought I would try to get caught up on updates.
>
> Friday we met with the surgeon about Mary Elizabeth's gtube. She said that her part is no problem but she is concerned about her being put to sleep. When we meet with the anesthesiologist team if they give us the ok her surgery will be done. She is scheduled to be admitted on April 25th for fluids & pre-medication. Please pray the insurance approves that. Her surgery is scheduled for the 26th. She will have to stay at least 2 days so that the stitches can be removed. Please pray for God's will to be done. We have put a lot of prayer into this. As she gets older she gets very tired while eating. We know the benefits of it but want to be sure that outweighs the risk.
>
> Michala is struggling with teenage years & increased seizures, strength & length. We are increasing her vigabatrin.
>
> About 4 months ago Marlee Anne starting having episodes at night where she would throw up. Sometimes she wakes up before & sometimes not. She is also having joint, muscle & stomach pain. About a month ago she started having severe headaches that come on quickly. We are trying to figure out what is going on with her. Still waiting on more test results. Please pray for direction & answers & complete healing for her. She is up & about doing her regular schedule. We try not to talk about it unless she brings it up & wants to.
>
> We know that no matter what, like always God has this. It's just hard for me to accept that our only healthy child may be sick.
>
> As long as Abe is taking the new medicine his stomach is not bleeding. We have to discuss with GI how long he can be on this medicine before something has to be done. Again not sure the risk of putting him to sleep is worth it or warranted.
>
> This kind of feels like a heavy email. Sorry for that. I will share that Chris Tomlin's How Great is Our God has been on my heart & lips lately. Also this morning Aunt Nay reminded me of Mandisa's Stronger. Thanks so much to each of you for continuing this journey with us, lifting us up, standing in the gap & joining us in prayer!
>

Sunday, March 11, 2012

I'm not home yet!

WOW! What powerful words!

We were purchasing one of Abe's seizure medications from Canada because it wasn't available in the US. Well now it's FDA approved & I was told today our wonderful (sarcasm) insurance is not going to cover it. Well I went to the pharmacy because this awesome pharmacist was being so helpful with it. (that part was just because I needed to get it off my chest & share why God took me out of the house tonight & was able to get my attention in a mighty way)

When we are all in the van together we usually don't listen to the radio but since I was alone tonight I did. This song came on. The chorus goes, All I know is I'm not home yet. This is not where I belong. Take this world and give me Jesus. This is not where I belong. The song is by Building 429 and it's called Where I Belong.

Mike & I often talk about not "fitting in" here. So many times I think it's because we are a different family. Family and friends go out to dinner, movies, & shopping. Couples go out together. Families get together. Families go to church or events. Often I feel the world goes on with their lives while we are just here.

As I listened to the words of that song God reminded me to be thankful for our differences. To be thankful that we don't "fit". The reason we don't fit is because we don't belong. We are here for a purpose. We are heading towards our home.

What an incredible peace to know this is not our home. Better things await. What a glorious day!

Kelli
http://nomatterwhathappens-kelli.blogspot.com/
http://m.facebook.com/kelliskreations

Monday, March 05, 2012

UGA Miracle Dance Marathon 2012

As I searched for a scripture that relates to what these incredible UGA students are doing I found Acts 20:35. In all things I gave you an example, that do laboring ye ought to help the weak, and to remember the words of the Lord Jesus, that he himself said, It is more blessed to give than to receive.

This morning in my inbox was a great devotion from my precious friend Courtney. The scripture was, Carry each other's burdens, and in this way you will fulfill the law of Christ. Galatians 6:2. So fitting.

Back in the summer I received a phone call from a precious UGA student named Calli. We had the most wonderful conversation. She wanted to know if 3 of our children would be miracle kids for UGA miracle. Apparently our sweet friend Kylie had given them our name. Well absolutely. If Kylie was part of it & thought we should be we were there.

The first event we attended was at the zoo in Athens. I know many of you are going there is a zoo in Athens. Well yes there is. Very nice one too. It's called Bear Hollow Zoo & it's filled with Georgia'a native wildlife. We saw several animals that had been rescued & were there for rehabilitation.

Soon we met our family partners Sara Bess, Emily & Kayla. What beautiful girls & precious spirits about them.

The big event was this weekend at UGA. It's called Dance Marathon. There are about 1,000 UGA students giving of their time & love for our children & all the miracle kids.

This was our first time so we weren't sure what to expect. Sara Bess was waiting for us when we got there. There was a family corner where we got settled & waited for time for it to start. Soon Emily & Kayla joined us.

Opening ceremonies included all the families walking in with their teams. Throughout the 24 hours the colors have different competitions. We were the silver team. When we walked through the 1,000 students minus family partners were lined up on either side for us to walk through. You know how the players run through with the cheerleaders lined up on either side. Well it was like that. The students were our cheerleaders. Well Mary Elizabeth was in her element. All eyes on her with lots of cheering & praise. She loved it. I have to say even daddy who doesn't like the limelight was so proud to be pushing his angel. Michala didn't care who all the commotion & excitement was for she just loved it. She saw 1,000 students that would clap with & for her for 24 hours. Marlee Anne thought it was cool & Abe was just not too sure.

Soon it was time to eat. Really?! We ate every 4 hours. I am telling you they thought of everything. Ok maybe not "real" coffee but besides that everything!

Throughout the day & night families shared their stories. Oh wait I didn't tell ya'll. UGA Miracle does all this For The Kids (FTK). They raise money that goes to all 3 Children's Healthcare of Atlanta locations to help the kids. Well we get to hear other families stories, meet new families & hang out with families that walk through this journey with us.

Some how, not sure when it happened Mary Elizabeth found a UGA student to fall in love with. She had this look in her eye, smile & giggle each time he walked up. His name is Michael. He is this big tall guy that towers over Mary Elizabeth is her wheelchair & she loved it!!! She recognizes those who have a special heart & she recognized him right off. I didn't even get a picture of the two of them together. Oh well next time!

Mike had to come back home midday for Celebrate Our Home. Our family partners were so great & such a huge help during this time. I even got to walk to Jittery Joes with my dear friend Rachel during this time.

It was time to eat yet again. Sandwiches from Schlotzsky's. Yum! I have to verify but I think all these places donated food. Our first meal was provided by Chick-fil-a.

Mike was back with guitar & drum in hand. Marlee Anne was going to play the guitar while Michala was playing the drum. Afterwards we were scheduled to speak. Marlee Anne got up on stage & froze but Michala had no problem rocking it out. She loved the attention.

As I began to speak I wanted to thank the students but the words didn't seem to flow. Over 100 students pledged to stand for 24 hours. 24 hours without sitting down. When I heard that Trey was doing that I was blown away. Then I found out most if not all executive board was doing that. Then more & more I was seeing the 2012 race numbers for those standing 24 hours for our children that cannot stand. Our 3 children that use wheelchairs are not using them because they get tired but because their legs are not strong enough for them to stand. Michala could if she had a prosthesis but because her seizures are so hard it would be very dangerous. So these students standing for 24 hours for kids that cannot stand had a huge impact on me. It meant more to me than they will ever know.

There was something going on the entire 24 hours. I missed some of the families sharing their story. The ones I heard were so touching & life changes even the stories I already heard before in the past from the families we are friends with.

At 6 the family partners stayed with the children while the parents went out. Abe was having a tough time so we hung around. Mike went & got sushi for he, Marlee Anne & our family partners but I chose Longhorns which was right beside there. Our longtime dear friends Shirley, Kaitlin & Ashlen who live in Athens came over to spend some time with us. They brought Gigi's cupcakes. I think they were for Michala but I limited her to one so we could have the rest for our 2:00 AM treat. Man they were good!

After getting the meds done & everyone ready for bed we headed to the hotel. Again something I need to check on but I think the hotel rooms were donated by local hotels. We were staying at the Country Inn & Suites. We got everyone settled & Shirley took me back to the college. After a stop for a "real" coffee to help me through the night.

Shirley & Ashlen stayed with us to watch the hypnotist. WOW! That was amazing & hilarious beyond words. I was so sore from laughing so hard.

There were times when I questioned whether Marlee Anne & I were going to make it the whole 24 hours. It never failed one of students would come up to help us get through. Maybe a snack, a real cup of coffee or a game of spoons. Every time I saw one of the students that had pledged to stand for 24 hours it helped encourage me in a big way.

Our friends came back to speak at 5 so that helped to get us through those hours. Plus an awesome dad went on a Starbucks run.

Throughout the 24 hours the students were learning a dance. They performed it for us at the end. Wow! It was amazing. Michala absolutely loved it!

At the end was the circle of hope. The students had hospital bands on their arms with the names of the Miracle Kids & children who were hospitalized right now at CHOA. The students made a huge & I mean huge circle around the room. The families were in the middle of the circle with scissors. We were to cut off the hospital bands. As I started cutting off the bands the tears started to flow. I cannot put into words very easily what an impact that had on me. I cannot tell you how many hospital bands I have cut off my children's arms. Each one meaning different things, different hospital visits, different results but with the same meaning. When the hospital band was cut off it meant something was over, something was accomplished. Hopefully with great results. Each band I cut off I prayed for that student that was wearing it. I prayed their lives had been changed, blessed & enriched by what went on this weekend & by what they had accomplished. I prayed for the child or children listed on that band. It was overwhelming in a big way for me & our family.

This year UGA Miracle raised $312,000 for Children's Healthcare of Atlanta. Over the past 17 years they have raised 3 million dollars. Wow! That's amazing. This was done by college students. Not that I doubt they could. It's just that to raise that much money & orchestrate such a huge event like Dance Marathon takes so much time. So much time they could be using to do college stuff. They could be thinking of themselves but instead they are selflessly thinking of & working hard For The Kids. Our kids! To say I am blown away by it & them is putting it mildly. They are awesome! UGA Miracle ya'll ROCK! Many of ya'll took time to meet our children, spend time with them & talk to them. Even though you may not have gotten a verbal response from them you hopefully knew what your time & attention meant to them. The pictures show it especially Abe's look on his face with all the attention he got from the pretty college girls.

As we were leaving some of the students confirmed that you could wear pjs to class so I think Mary Elizabeth is so there if she were going to college. That means I can buy her some DAWGS clothes! Woohoo!!!

Thanks UGA Miracle for all you do!!!

Kelli
http://nomatterwhathappens-kelli.blogspot.com/
http://m.facebook.com/kelliskreations

Thursday, March 01, 2012

Relay

Many of you have asked why we don't do Relay anymore. I don't want to start a debate but I do want to share & I think this sums it up. I think the biggest thing is to know your causes & what happens to the money when you donate & raise money for a cause. Thanks so much to all of you that supported us so greatly with this over the years.

http://curechildhoodcancer.ning.com/profiles/blogs/my-thoughts-about-the-american-cancer-society

Kelli
http://nomatterwhathappens-kelli.blogspot.com/
http://m.facebook.com/kelliskreations

Monday, January 09, 2012

Need to share

Ya'll I haven't shared these feelings because I thought they would pass quickly as they usually do. I think they are lingering because I have been so sick & I am exhausted. 

Anyway I have this heavy on my heart feeling the older I get about taking care of my children in later years. Then I worry about what will happen to them if something happens to Mike & I. 

I know without a doubt that God has this under control. It's all part of His plan but sometimes, like now it's hard to let go. It's overwhelming to think of taking care of 3 children with extensive medical issues who are completely dependent as we get older & they grow. 

I try hard not to dwell on it & most times if it comes to mind it does pass quickly. I thought maybe sharing my thoughts & feelings might help them pass & get off my mind. 

This is lots of rambling because I can not get my thoughts in order. I think I need to sleep.

Tuesday, November 08, 2011

Heart thoughts

Just needed to take a minute to share some thoughts.

Having one of my moments. I dislike this time of year really bad. Not the thankfulness or celebrate the birth of Christ but just this time. I miss my daddy & brother more than ever during this time & it seems to me our children's disabilities are amplified & they miss out on so much no matter how hard we try. If you understand how I feel I am sorry! If you don't understand how I feel I am so thankful!

For my dear friends who are celebrating this year without a loved one especially a child, my heart & prayers are with you. Thank you for allowing me a minute to share my heart thoughts honestly.

Tuesday, September 20, 2011

Michala's day

Well it's September 21st. It's Michala's day as one of CURE Childhood Cancer 2011 CURE's Kids Conquer Cancer One Day at a Time. To those of you that contributed all ready thank you so much! For those that are interested in donating there is still time.

We really appreciate all the support. Thank you!!!!

Kelli
http://nomatterwhathappens-kelli.blogspot.com/
http://m.facebook.com/kelliskreations

Sunday, September 18, 2011

Amazing day!

Today our family had the privilege of attending Sunshine Family Fest at The Park Tavern at Piedmont Park for Camp Sunshine. It was amazing!

Always Saturday was the band who hosted it. KittyWolf and Mommie performed. The Monkey Dr was there too. I cannot wait to share the pictures.

I have a huge favor to ask. Always Saturday is giving all the proceeds of the downloads of their song Love is Plural to Camp Sunshine. My challenge is for everyone to give up something for one day that you would typically spend .99 cents on & go to the link http://www.alwayssaturday.com/10k.html to download the song. It's quick & easy & really a great song. Always Saturday's goal is 10,000 downloads for Camp Sunshine. Let's see how quick we can help them reach that goal. Thanks so much!!!

Kelli
http://nomatterwhathappens-kelli.blogspot.com/
http://m.facebook.com/kelliskreations

Sunday, September 11, 2011

Hayden's golf benefit

Ya'll Hayden is a precious friend of ours that has Lennox Gastaut syndrome like Michala & Abe. This benefit it to be able to get Hayden a service dog that will help him lead a more childlike life without so many restrictions. The dog will be able to sense Hayden's seizures and help keep him from harm. Please consider playing in the tournament or making a donation to help this wonderful family that is so dear to us. Thanks so much!!!

http://gak9.com/events/hayden_golf_benefit.html