First of all THANK YOU for your prayers! Even if it didn't help Michala, well it probably did cause I am sure it could have been worse, it helped Mike and I have some laughs and look at it like there was nothing we could do to change it. I have to laugh each time I think of Michala and her EEG. NO she didn't sleep at all. He was very patient and waited and waited. He had to put her in the papoose because she kept grabbing the wires. He felt bad because he had never had to do that. Even with that she is so strong and kept sitting up. Her foot and leg was sticking out and she kept kicking Mike in the head with it. She got one hand out a little bit and kept clawing us with it. The whole time now we are supposed to be getting her to go to sleep. It's one of those times when you have to laugh to keep from crying.
When he put the flashing light on her she kept turning her head and closing her eyes. A lot of good that light did. Mike reminded me on the way out that's the reason we do not do those very often. Hopefully he got enough info to help us decide what direction to go in with her seizures and meds.
While we were waiting to be called back, this volunteer - a big guy came walking by with this precious tiny little baby. I told the baby hello and he stopped to let us speak to her. He told us that he is a policeman and volunteers there. What an amazing heart this guy must have. It made me once again thankful that Mike and I are blessed to be able to be with the girls when they have to be in the hospital. I love how God uses some many people around us to remind us of our blessings we sometimes miss and take for granted.
Last night we had the opportunity to go to Camp Sunshine House for Spa Sydell night. WONDERFUL!!! We couldn't find anyone to keep the girls so we decided that we would just take them. They all did wonderful. Our Camp Sunshine family is such a true blessing to us.
We found out last night that two of our special Lighthouse friends' cancer has relapsed. Please remember Chayton and Abby and their families in your prayers.
Thanks so much for your continued prayers for us. It's truly what gets us through each day!