Update

> While we are traveling to Greenville I thought I would try to get caught up on updates.
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> Friday we met with the surgeon about Mary Elizabeth's gtube. She said that her part is no problem but she is concerned about her being put to sleep. When we meet with the anesthesiologist team if they give us the ok her surgery will be done. She is scheduled to be admitted on April 25th for fluids & pre-medication. Please pray the insurance approves that. Her surgery is scheduled for the 26th. She will have to stay at least 2 days so that the stitches can be removed. Please pray for God's will to be done. We have put a lot of prayer into this. As she gets older she gets very tired while eating. We know the benefits of it but want to be sure that outweighs the risk.
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> Michala is struggling with teenage years & increased seizures, strength & length. We are increasing her vigabatrin.
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> About 4 months ago Marlee Anne starting having episodes at night where she would throw up. Sometimes she wakes up before & sometimes not. She is also having joint, muscle & stomach pain. About a month ago she started having severe headaches that come on quickly. We are trying to figure out what is going on with her. Still waiting on more test results. Please pray for direction & answers & complete healing for her. She is up & about doing her regular schedule. We try not to talk about it unless she brings it up & wants to.
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> We know that no matter what, like always God has this. It's just hard for me to accept that our only healthy child may be sick.
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> As long as Abe is taking the new medicine his stomach is not bleeding. We have to discuss with GI how long he can be on this medicine before something has to be done. Again not sure the risk of putting him to sleep is worth it or warranted.
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> This kind of feels like a heavy email. Sorry for that. I will share that Chris Tomlin's How Great is Our God has been on my heart & lips lately. Also this morning Aunt Nay reminded me of Mandisa's Stronger. Thanks so much to each of you for continuing this journey with us, lifting us up, standing in the gap & joining us in prayer!
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