Just a reminder about my Stella & Dot catalog show. It is soon to close. If you would like to order please go to http://www.stelladot.com/sites/sjs and click find your hostess. Type in my name & order. Thanks so much!
Hi, my dear friend Heather (Zoey's mom) sent me a link to your blog. Our children have some similarities. My daughter is 3yo and has just been diagnosed with mitochondrial disorder. She was diagnosed with Infantile Spasms at 5mo and had uncontrolled seizures for 2+yrs. She tried 13 different medications as well as the Ketogenic diet, none of which helped her at all. Then finally in December, Banzel stopped her seizures. We see things here and there that still look "seizure-ish" but it is such a blessing to finally see her able to sit still for once in her life without nonstop twitching/seizing. I know all too well the heartache of watching your child seize all day long every day and I can only imagine your heartache having multiple kiddos with multiple disabilities. Please feel free to email me anytime babyreaganleigh@yahoo.com. Take care! Tera
I am wife to my wonderful husband of 21 years, mommie to 3 beautiful little girls, and a little boy, an amazing family, special friends here at home and terrific friends all around the world, lots of those being cyber friends. Gotta love the Internet.
Things I love: God, my family, my friends, scrapbooking, Disney, reading and anything crafty.
Things you will read here - anything about our day to day life. Trips we have taken. Crazy activities, fun stuff and even some challenging times. I tend to share my heart a lot.
Mary Elizabeth's medical stuff, including her Mitochondrial disease, panhypopituatarism, reactive airway disease, apnea, epilepsy, day to day challenges and more.
Michala's medical challenges including Aicardi syndrome, seizures, cancer, amputation, schizenchepaly, Duane syndrome, lacunae, blindness, autism and more.
Marlee Anne's creative and loving spirit.
I have battled with not having a caring bridge site for Mary Elizabeth and Michala. After some encouragement from many I am hoping to use this as my ongoing journal of sorts. I hope that ya'll enjoy the journey with us.
1 comment:
Hi, my dear friend Heather (Zoey's mom) sent me a link to your blog. Our children have some similarities. My daughter is 3yo and has just been diagnosed with mitochondrial disorder. She was diagnosed with Infantile Spasms at 5mo and had uncontrolled seizures for 2+yrs. She tried 13 different medications as well as the Ketogenic diet, none of which helped her at all. Then finally in December, Banzel stopped her seizures. We see things here and there that still look "seizure-ish" but it is such a blessing to finally see her able to sit still for once in her life without nonstop twitching/seizing. I know all too well the heartache of watching your child seize all day long every day and I can only imagine your heartache having multiple kiddos with multiple disabilities. Please feel free to email me anytime babyreaganleigh@yahoo.com. Take care!
Tera
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