Our vistor

Michala's Aicardi sister Dakota and her mom Jen came for a visit from Florida. It was so wonderful to get to see them. They are part of the blessings of Aicardi syndrome. Without that we never would have been so blessed with their friendship and that of other families dealing with Aicardi.

Marlee Anne was quite the little hostess. She loved having them come spend the night. She wanted to make sure they were comfortable and had everything they needed. She is already planning for them to come back.

It was really sweet to see Michala and Dakota interact with each other. No words just longing intent looks. Dakota was lying on a blanket and Michala went right up to her to see what she was doing. She was very good for a little while. Soon she decided it was time to pat Dakota. Didn't take long and it was too hard so she had to leave the room.