Ya'll we just ordered a twin tandem wheelchair. If insurance approves it we will have the capabilities of changing the seats out so that we can have any combo of two riding together. This would be wonderful because it would free Marlee Anne up to be the 7 year old that she should be instead of having to push one of her siblings. She could still push someone at times when she wants to but will give her some freedom. Please pray that insurance approves it. I am so excited but trying not to get too excited so I am not disappointed if it doesn't work. It's really awesome and I have attached a picture.
Michala's appt yesterday went well. We loved the doctor. It seems though that he has never placed a VNS in the back. That's a little concerning to me. Also the VNS surgery itself is going to take 3.5 hours and the botox will be additional time. Didn't realize she would be under for that long. We did discuss length of stay. He said most patients stay over night but he was fine with her coming home the same day if we felt ok with that. We know that she will not leave the IV in and keeping her in a hospital or even in the hospital is going to be a job. We are still waiting to hear back about the date of her surgery.
Thanks so much for the prayers for a good and safe appt. Thanks for praying with us about the double wheelchair too. Our "wheelchair guy" David said that there is not much need for it so he doesn't know how easy it will be to get approved. We are having faith that it will just slide right through.
Michala's appt yesterday went well. We loved the doctor. It seems though that he has never placed a VNS in the back. That's a little concerning to me. Also the VNS surgery itself is going to take 3.5 hours and the botox will be additional time. Didn't realize she would be under for that long. We did discuss length of stay. He said most patients stay over night but he was fine with her coming home the same day if we felt ok with that. We know that she will not leave the IV in and keeping her in a hospital or even in the hospital is going to be a job. We are still waiting to hear back about the date of her surgery.
Thanks so much for the prayers for a good and safe appt. Thanks for praying with us about the double wheelchair too. Our "wheelchair guy" David said that there is not much need for it so he doesn't know how easy it will be to get approved. We are having faith that it will just slide right through.
